Systematic mapping of the global educational offerings for multiple sclerosis patients on the topic of disease progression. Presented at ECTRIMS, Stockholm, Sweden
Bharadia T et al. 2019
This poster was presented at annual congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) in 2019, and showcases results from a systematic mapping exercise, which aimed to identify the diversity and distribution of online resources on the topic of disease progression.
Results highlighted the importance of different providers of education online for people with multiple sclerosis (PwMS), with providers’ resources varying significantly in both frequency and impact. Results also showed a large number of repeated resources from non-MS-specific providers, potentially at the expense of more tailored information sources, which may prevent PwMS from accessing tailored local resources that provide a broader range of information. Overall, results showed a relative absence of resources intended to support patient–healthcare professional communication on the topic of disease progression, presenting an important education gap which needs to be addressed.
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Disease progression in multiple sclerosis: A literature review exploring patient perspectives
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