Comparing patient and healthcare professional perceptions on multiple sclerosis management and care – where do their priorities differ? Results from a qualitative survey. Presented at ECTRIMS-ACTRIMS, Paris, France
Rieckmann P et al. 2017
This poster was presented at the annual congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) in 2017, and reports on results from a 10-question electronic survey developed by the MS in the 21st Century to compare the MS management and care priorities of healthcare professionals (HCPs) and people with multiple sclerosis (PwMS), and identify disparities between HCP and PwMS perceptions on communication barriers and unmet needs in MS care.
Results showed that HCPs and PwMS often have different perceptions of their interactions, which can negatively impact the standard of care PwMS receive. Notable areas of disconnect between PwMS and HCPs include patient support at diagnosis, shared treatment decision-making and communicating about disease progression, of which one in four PwMS report having not discussed disease progression with their HCP. Joint education of HCPs and PwMS and the production of more patient-focused education resources could help support better communication between HCPs and PwMS.
Related MS21 data
Disease progression in multiple sclerosis: A literature review exploring patient perspectives
Patient Prefer Adherence. Jan 2021Read more
More support from MS21
Expand your knowledge
Read the latest peer-reviewed manuscripts, congress posters and patient lay summaries from the MS21 team, demonstrating our commitment to evidence-based approaches for improving MS care.
Be part of the data
Tell us about your experience in treating people with MS in one of our quick surveys – you could help to shape future MS21 resources.
Try MS support tools
Check out MS21’s free tools to improve communication with your patients and their caregivers.