Meet MS21's members
MS in the 21st Century (MS21) started in 2011 as a group of healthcare professionals with the aim to standardize multiple sclerosis (MS) care worldwide.
The importance of the patient voice was clear and, in 2016, people living with MS (PwMS) were invited to join the group.
Research has found that:
- There are differences between what healthcare professionals and PwMS believe to be the unmet needs in MS care, and
- For the two groups to better understand and support each other, communication in MS care needs to be improved. Therefore, the goals to standardize MS care are to:
- Improve communication between healthcare professionals and PwMS; and
- Develop practical educational resources based on real-world needs and data.
- Conduct real-world evidence, clinical research and insights to further understand the unmet needs in MS care
Please see below for more information about MS21’s members.
Members
Birgit Bauer
Ms Bauer was diagnosed with MS in 2005, after which she started her life afresh. She says, ‘I’m the boss of my...
David Yeandle, OBE
David Yeandle was diagnosed with relapsing-remitting MS in 2010, having experienced symptoms up to 3 years prior to...
Jane Shanahan
Ms Shanahan was initially diagnosed with clinically isolated syndrome (CIS) in 2015, aged 50; a full diagnosis of MS...
Jocelyne Nouvet-Gire
Ms Nouvet-Gire has been living with MS for over 15 years in France. Before her diagnosis, she was a clerk of the...
Maija Pontaga
Ms Pontaga has been the Co-Chair of the Latvian Multiple Sclerosis Association since 2017 and a member of the EMSP...
Maria Paz Giambastiani
Ms Paz Giambastiani is a journalist and Argentine native, currently living and working in Spain. She has been living...
More support from MS21
Expand your knowledge
Read the latest peer-reviewed manuscripts, congress posters and patient lay summaries from the MS21 team, demonstrating our commitment to evidence-based approaches for improving MS care.
Be part of the data
Tell us about your experience in treating people with MS in one of our quick surveys – you could help to shape future MS21 resources.
Try MS support tools
Check out MS21’s free tools to improve communication with your patients and their caregivers.