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Meet MS21's members

MS in the 21st Century (MS21) started in 2011 as a group of healthcare professionals with the aim to standardize multiple sclerosis (MS) care worldwide.

The importance of the patient voice was clear and, in 2016, people living with MS (PwMS) were invited to join the group.

Research has found that:

  • There are differences between what healthcare professionals and PwMS believe to be the unmet needs in MS care, and
  • For the two groups to better understand and support each other, communication in MS care needs to be improved. Therefore, the goals to standardize MS care are to:
  • Improve communication between healthcare professionals and PwMS; and
    • Develop practical educational resources based on real-world needs and data.
    • Conduct real-world evidence, clinical research and insights to further understand the unmet needs in MS care

Please see below for more information about MS21’s members.

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Members

Birgit Bauer

Birgit Bauer

Ms. Birgit Bauer was diagnosed with multiple sclerosis (MS) in 2005, after which she started her life afresh. She says,...
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David Yeandle, OBE

David Yeandle, OBE

David Yeandle was diagnosed with relapsing-remitting multiple sclerosis (MS) in 2010, having experienced symptoms up to...
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Jane Shanahan

Jane Shanahan

Ms. Jane Shanahan was initially diagnosed with clinically isolated syndrome in 2015, aged 50; a full diagnosis of...
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Jocelyne Nouvet-Gire

Jocelyne Nouvet-Gire

Ms. Jocelyne Nouvet-Gire has been living with multiple sclerosis (MS) for over 15 years in France. Before her...
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Maija Pontaga

Maija Pontaga

Ms. Maija Pontaga has been the Co-Chair of the Latvian Multiple Sclerosis Association since 2017 and a member of the...
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Maria Paz Giambastiani

Maria Paz Giambastiani

We were very sad to have been informed recently of the passing of Ms. Maria Paz Giambastiani. Ms. Paz Giambastiani was...
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